What works in dementia care? Research evidence for policy and practice: Part I

Author(s):  
Murna G. Downs ◽  
Steven H. Zarit
Author(s):  
Suzanne Cahill

This chapter will be used to highlight the key contribution this book makes to the field of dementia care policy and practice, as well as identifying some of its limitations. Returning to the core themes consolidated in the UN Convention and introduced in chapter three namely equality autonomy participation and solidarity and based on the topics reviewed in earlier chapters, the chapter points to the gaps that exist between the rhetoric of policy initiatives and the reality of peoples’ everyday lives and the further gap that can exist between policy objectives and research evidence. The chapter argues for a need for much more budgetary and political attention to be focused on dementia and for future iterations of dementia strategies to take cognizance of human rights issues. Human rights legislation rather than being seen as punitive and burdensome should be viewed as a critical framework for guiding all levels of action with people with dementia and their family members.


Author(s):  
Gill Toms ◽  
Catherine Lawrence ◽  
Linda Clare

It is now widely acknowledged in policy and practice that the individual with dementia retains the status of a person and the essence of selfhood, has the right to be heard, and has the capacity to live well with the disabilities that dementia brings, given appropriate support. Nevertheless, negative assumptions about dementia as a ‘loss of self' and a ‘living death' remain influential. This chapter examines research evidence that can provide a foundation for a psychologically minded approach to dementia care and help to create a more constructive view of what it means to live with dementia. In this chapter findings are drawn from projects conducted by the Research in Ageing and Cognitive Health (REACH) group at Bangor University, UK on awareness, self-concept, identity and the experience of dementia for people across the dementia trajectory. The REACH group is now at the University of Exeter, UK.


2021 ◽  
pp. bmjspcare-2021-003096
Author(s):  
Anne Finucane ◽  
Emma Carduff ◽  
Richard Meade ◽  
Sarah Doyle ◽  
Stephen Fenning ◽  
...  

In palliative care, as in many areas of medicine, there is a considerable amount of research conducted that makes sound recommendations but does not result consistently in improved care. For instance, though palliative care has been shown to benefit all people with a life-threatening illness, its main reach continues to be for those with cancer. Drawing on relational models of research use, we set out to engage policy-makers, educators, clinicians, commissioners and service providers in a knowledge exchange process to identify implications of research for Scottish palliative care priorities. First, we mapped the existing palliative care research evidence in Scotland. We then organised evidence review meetings and a wider stakeholder event where research producers and users came together to coproduce implications of the evidence for policy, education and practice. We used questionnaires and key stakeholder feedback meetings to explore impacts of this process on research uptake and use immediately after the events and over time. In this paper, we reflect on this knowledge exchange process and the broader context in which it was set. We found that participation fostered relationships and led to a rich and enthusiastic exploration of research evidence from multiple perspectives. Potential impacts relating to earlier identification for palliative care, education and need-based commissioning ensued. We make suggestions to guide replication.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 757-757
Author(s):  
Marie Boltz ◽  
Karin Wolf-Ostermann ◽  
Katie Maslow

Abstract Dementia poses a societal challenge that is life-changing not only for persons with dementia (PWD) but also for family members and friends (informal carers) directly involved in the care arrangement. Informal carers (IC) have typically poorer outcomes in terms of well-being, quality of life (QoL), health status, and use of health care resources. Dyads of PWD and IC living with dementia are characterized by strong reciprocal relationships and complex living contexts. Therefore, research should investigate home based dementia caregiving from a dyadic perspective to yield interventions that support the PWD, the IC, and the unit as a whole. However, it is an ongoing challenge to investigate dyadic needs and preferences in daily practice and develop effective interventions. Challenges are related to incomplete understanding of dyadic characteristics, attitudes and beliefs within the dyad, as well as how to adapt research approach to engage and retain the dyad in research. This international symposium will therefore address these issues. The first presentation will describe a typology of dementia care dyad characteristics and needs in Germany. The second presentation will examine the challenges and opportunities associated with recruiting and retaining dementia dyads. The third presentation will explore ethical challenges posed in communication with dyads and possible solutions for the researcher. The final presentation reports on the Meeting Centre Support Program as an example of an effective psychosocial intervention employing research strategies that transcend cultural barriers. Our discussant, Katie Maslow, will synthesize the presentations and lead a discussion of future directions for policy and practice.


2021 ◽  
Vol 37 (2) ◽  
pp. 166-174
Author(s):  
John H. Laub

Criminologists are often frustrated by the disconnect between sound empirical research and public policy initiatives. Recently, there have been several attempts to better connect research evidence and public policy. While these new strategies may well bear fruit, I believe the challenge is largely an intellectual one. Ideas and research evidence must guide public policy and practice. In this article, I present highlights from my tenure as the Director of the National Institute of Justice (NIJ), the research, development, and evaluation agency in the Department of Justice. One of the ideas that I emphasized at NIJ was “Translational Criminology.” I believe translational criminology acknowledges NIJ’s unique mission to facilitate rigorous research that is relevant to the practice and policy. I also discuss the challenges I faced in bringing research to bear on public policy and practice. I end with a call for my colleagues in criminology and criminal justice to become more involved in government.


2013 ◽  
Vol 22 (Suppl 1) ◽  
pp. A15.3-A16
Author(s):  
M Berry ◽  
J McCallum ◽  
D Ghersi ◽  
A Fitzgerald ◽  
J Clydesdale ◽  
...  

2006 ◽  
Author(s):  
Sheena Asthana ◽  
Joyce Halliday

What is it like to be a child growing up in Britain these days? Is it a happy or anxious time? What are the best and worst aspects of being a child today? This book draws on accounts of over two thousand children and five hundred adults, to examine the present day meaning of childhood and its implications for policy and practice.


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